Michael Cecere’s child, Weston, is five years old. He struggles with daily living. He cannot speak, usually move by stroller or wheelchair, and only just learned to drink from a straw. The reason: a genetic deletion on his 15th chromosome, causing a condition called Angelman Syndrome, discovered after his mother noticed that he was missing developmental milestones. Cecere has bought a bi-ski and an adaptive bicycle so he can take his son on outings with his other two children. “We’re trying to keep everything as typical and enjoyable as we can,” Cecere says.