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E-Patient Update:  Changing The Patient Data Sharing Culture

May 22, 2017

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I’ve been fighting for what I believe in for most of my life, and that includes getting access to my digital health information. I’ve pleaded with medical practice front-desk staff, gently threatened hospital HIT departments and gotten in the faces of doctors, none of whom ever seem to get why I need all of my data.

I guess you could say that I’m no shrinking violet, and that I don’t give up easily. But lately I’ve gotten a bit, let me say, discouraged when it comes to bringing together all of the data I generate.

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