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GDPR: study highlights data protection challenges for research

The research community often requires the depositing of individual genetic data from studies into research depositories to improve data sharing. This supports the reproducibility of new findings and facilitates discoveries.

Attempts to comply with the requirements of journals and funders often clash with GDPR.

Under GDPR, participants in research studies have the right to withdraw consent for further use of their data, which includes the processing of their data in research repositories. The legislation also requires data processing to be limited to that which is necessary to fulfil a study’s objectives, ruling out the long-term retention of data for unspecified uses.